Egull1's Journal, 13 Sep 23

So, blood draws were taken yesterday and results already provided. Everything looks pretty darn good, with only a few things to address or be mindful about. The t-cell count is down a couple of points, but not outside its normal low range. My over-all white blood cell count took a hit and dropped from 6-->4.9. But, that's actually a good thing in the "auto-immune" world.

In fact, it's probably good to mention here that most folks would consider these not so great readings. However, they are actually considered good ones for an auto-immuner. It's just weird like that, but there ya go.

Metabolic panel came out good over-all as well. I've finally given into acceptance over the BUN/Creatinine ratio, which unfortunately sits in the abnormally high range suggesting consistent dehydration. I have taken great pains to be genuinely hydrated most of the time and that includes a good mix of sodium, potassium, and magnesium. The magnesium was hand picked by my neurologist in her office so that I might find the type that would work well with my stomach.

But, I also discovered in that 6 weeks I was not on an MS med Jan-Feb while transitioning to a new one - Yours truly did not sweat near as much OFF the meds as I do on them. The difference is so significant I actually thought I had "sweat" adapted, which can happen from prolonged training. But, literally the first week back on a new med and the sweat fest began. I can literally squeeze the sweat out of my sports bra like I'm ringing out a towel. It's un-real especially when you don't naturally sweat that much off the meds.

So, I do what I can, but it is what it is...I apologize to my kidneys in advance is about all I can say.

Now for the things that need to be addressed. My MCHC came out on the abnormally low end of the spectrum, but not too far below. While my MCV sits on the high end, which is indicative of....

drum roll please -----> SPORTS ANEMIA --YAYEEE!

Actually, this made me smile and even chuckle a little. And, no worries folks it's not that abnormal. We're talking .5 points below the normal low range. I suspect it was lower 4 weeks ago after the 70.3. And, if you haven't figured it out already "sport anemia" is very common to the endurance community and also the reason Lance Armstrong dipped into some roids for the Tour De France.

And, no I won't be doing any roids. I get a whole gob full if I happen to have an MS flare up again, so I try to stay away from that stuff while I'm in remission. Needless to say, Sports anemia is very common among athletes. In endurance folks are blasting through red blood cells faster than they can be regenerated and/or often depleted of those micro nutrients that help shuttle more oxygen into the cells. In my case, the blood volume or hemoglobin is on the low side so adjustment in diet is about all that's needed here.

I won't need to take any iron pills as I'm post menopausal and Mom already put Beets on the grocery list.

And, the last thing that I need to be mindful of is the neutrophil count, which was already low after beginning MS meds back in 2017. But, is now in the abnormal zone. Your neutrophils are not T-cells so they're not the main soldiers on the ground fighting off foreign bodies, but your neutrophils are often responsible for helping to fight off bacteria and or bacterial infections.

So, I have finally hit that space in the immunosuppressant zone when I am very literally and technically prone to some infections and may have a difficult time warding off things like common colds, pneumonia, or other bacterial stuff like strep. Since, I don't have kids I should be fine! LOL

But, just in case I am going to get a pneumonia vaccine this year along with all the others. Never hurts especially when you may not have a strong enough army available in your own body to do it.

Outside of that, everything looks really good and I'm happy and relieved. I still have the MRI to go, but everything's backlogged right now for insurance companies so until the prior authorization comes through for that I don't have to hop into the machine, which perfectly fine with me.

However, since the blood tests came out good, I really think the MRI will be good as well. My immune system has taken enough of a hit not to be tempted to attack my brain matter.

So, thumbs up on this corner of the globe. I do hope all of you are having a wonderfully blessed and joyful day! Below shot was taken before wine and sunset out on our back patio! A toast to the last days of summer and the beautiful colors of autumn! :-)

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Comments 
You look fantastic and happy. Sounds like your body is doing a good job taking care of itself and your mindset has a lot to do with that. I’m proud of you and inspired by you. Press on, press on. You rock. 
13 Sep 23 by member: Katsolo
Hi. You are looking great. 
13 Sep 23 by member: Naomi Anne
love that smile 
13 Sep 23 by member: unity1234
As far as hydration goes, you’re missing two important ones. Carbs and Creatine. They are big players as well with sodium. Potassium and magnesium doesn’t help hydration but they are important to replace due to loss through sweat n urination 
13 Sep 23 by member: Supergainz1
Supergainz - I wanted to address this quickly. Folks with Multiple Sclerosis who have lesions on their brain and spinal chord such as myself actually go through twice the amount of sodium, potassium, and magnesium because our sensory and motor neurons use these elements (actually all of our neural fibers do) to send out electrical impulses that tell our muscles what to do. When those neural fibers are compromised such as in the case of Multiple Sclerosis, the body uses up twice as much of these minerals because it's working harder to send the impulse across the nodes of the neural fiber that are compromised by those lesions. The skewed signal that comes across is what causes the stiffness and spasticity in my lower limbs in addition to the numbness and lack of sensation from the waist down. Imagine how much potassium I'm going through in a 75 minute session on the bike at 273 watts burning 1200 cals in a session and losing more sweat than normal. And, um I don't know where you got your info but potassium is essential and sometimes referred to as it's own "electrolyte". That is why some MS specialists prescribe magnesium and potassium to MS patients because it actually helps with muscle spasms and to promote that electrical impulse to skip across the neural fiber more smoothly. And, it helped immensely with my own. Oh, and as far as carbs go I not only fill up my glycogen stores the night before but also the morning before I workout. I get in close to 350-400 carbs/day and 150 grams of protein and I'm only a 5'2 and 122 lbs., so I don't need as many carbs as a 200 pound 6 ft tall person. I think 350-400 carbs is more than ample for this physique. I think at 273 watts on the bike, any more carbs than that would make me vomit. I guess to speak to your statement, I really just want to say remember we all run on electricity and when the wiring is skewed, one needs to take in a few more considerations outside of carbs and creatine.  
13 Sep 23 by member: Egull1
Sounds like you are doing well and staying aware of your body's needs as usual. Good to hear the s!! 
13 Sep 23 by member: Diana 1234
Lol I never said they weren’t essential. I was addressing it towards hydration. Which you pointed out were your 3 main hydration points. So if you weren’t focusing on carbs and adding in Creatine, then you might want to look into that is all I’m saying. Or maybe I read it wrong but yes potassium, sodium, calcium are major electrolytes that gets used through contractions. But seems like you are getting enough carbs. Dehydration is caused from your bodies loss of the 3 main component. Sodium, carbs, Creatine. Maybe you are not replenishing to back enough? Like you can eat 400g of carbs but when you run or bike for that long you used up all of it so now your body has no glycogen to hold onto water. And less glycogen holds less sodium which holds even less water now.  
13 Sep 23 by member: Supergainz1
SuperG- I do think you're correct that I'm not replenishing enough after LOL! I really do get in electrolytes before and after my workout like I just did now after a 1200 cal burn 75 minute bike session. And, have a nice carbie dinner lined up with dessert and liquids included. But, since I go through twice as much electrolytes as the normal person and for whatever reason that med I'm on makes me sweat more...my body's probably trying to get rid of it, LOL! Can't say as I blame it. It's just hard to stay on top of hydration and of course it's not just a matter of getting in more water. I have to say I did bring the BUN/Creatinine down from 34 to 31 but it's still in the abnormally very high range. But, "they" say there's no cause for major concern unless it hits 50. Maybe the specialist has some ideas on what might help. @Diana, Naomi, unity, and Kat - I am actually feeling better than I have in a long while. Although, anything outside of 70.3 training feels magical, LOL! It feels good to just have time to do the quiet things I enjoy. Wine on the deck, time with Billy Flynn (my kitty), time with Mama, and space to meditate and enjoy my spiritual practice. After 70.3 I definitely have a deep appreciation for the little things and I find myself bubbling with joy often. Thank you all and love and blessings. And, thank you for your input SuperG - people just got a crash course on the central nervous system and what it takes to get your body moving ;-) 
13 Sep 23 by member: Egull1
Yea so Creatine adds about 5lbs of water onto my frame. But that’s dependent upon your muscle mass. But it would throw your readings off even worse. I guess the real question would be are you feeling the symptoms of dehydration. Or are you just nitpicking on numbers? Lol I hear you on electrolytes, it’s super important. I don’t even use 2x and I still find it kind hard to get it in. Especially potassium. But yea I cringe when lifters go low sodium and complain about strength. The stronger the electricity the better connection with the muscles which equals more power output ability. Btw incredible journey, im a fan and I don’t even like cardio but your story is pretty amazing  
13 Sep 23 by member: Supergainz1
Egull i just read this whole post and thank you for the education. What a journey you are on and what a beautiful mindset you have. You are, as katsolo said, very inspirational.🥰 
13 Sep 23 by member: Yearofhealth2023
Awww, thank you YH2023. I'm glad this girl's spirit spoke to yours :-) And, thank you Super. There are only 2 professional athletes out there I know of who will even admit to having MS. Neurologists in 1992 were still telling MS patients they were under no circumstances allowed to exercise. They didn't even bother to do the first study on how fitness impacts this condition until 2017 - the year I was diagnosed. The only reason I didn't join the study was because I had technically started my fitness journey 6 months before and they were looking for MS'ers who had no previous exercise experience. So, the percentage of folks in the MS community who do what I'm doing is very, very small. And, yet the results of the study were conclusive. Exercise undoubtedly has been shown to slow the progression of this disease on every level including brain volume. So, everytime I show up for a workout I know this body is making a contribution to science and further understanding of what our forms are truly capable of because so far I'm learning we are not as fragile as we sometimes think we are :-) 
14 Sep 23 by member: Egull1
Your MS numbers being considered "not good" to a "normal" person, is like my diabetic numbers, so I totally understand. Congrats on your AMAZING control over MS. 
14 Sep 23 by member: CarbAbuser
It looks like you are on quite a learning curve as well as your physical training. You are inspiring! 
14 Sep 23 by member: erikahollister
I always read your posts with admiration & joy that you achieve all that you do ❤️ 
14 Sep 23 by member: SherryeB
Oh my, 😧 I think I be mess some stuff up then... I don't eat a lot of crab and try to avoid sodium 😕... I don't know how to read my metabolic panel at all... I've been very confused hun how to eat when it comes to MS and I find a lot of the research very confusing. my doctor has not been very helpful I am trying to work on getting referred to a dietitian at this time. LOL 😂 sounds like I may need to get with you guys later when I'm not at work and talk some more... 🙄 😔 I try I really do. 
14 Sep 23 by member: Leah_guffey
glad to hear about the good test results. congrats on the 70.3! one day I'll do one of those 😁 
14 Sep 23 by member: Asarver
Good numbers. 
14 Sep 23 by member: Draglist
3.7 was my highest WBC count since Jan. I've got colon cancer and have developed severe malabsorption issues since, So I definitely understand the chronic dehydration part as well... My thoughts and prayers are with you 🙏💜 
15 Sep 23 by member: br00talbananas

     
 

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